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A Memoir
by Porochista KhakpourA powerful, beautifully rendered memoir of chronic illness, misdiagnosis, addiction, and the myth of full recovery.
For as long as author Porochista Khakpour can remember, she has been sick. For most of that time, she didn't know why. Several drug addictions, some major hospitalizations, and over $100,000 later, she finally had a diagnosis: late-stage Lyme disease.
Sick is Khakpour's grueling, emotional journey - as a woman, an Iranian-American, a writer, and a lifelong sufferer of undiagnosed health problems - in which she examines her subsequent struggles with mental illness and her addiction to doctor prescribed benzodiazepines, that both aided and eroded her ever-deteriorating physical health. Divided by settings, Khakpour guides the reader through her illness by way of the locations that changed her course - New York, LA, Santa Fe, and a college town in Germany - as she meditates on the physiological and psychological impacts of uncertainty, and the eventual challenge of accepting the diagnosis she had searched for over the course of her adult life.
A story of survival, pain, and transformation, Sick
candidly examines the colossal impact of illness on one woman's life by not just highlighting the failures of a broken medical system but by also boldly challenging our concept of illness narratives.
Paperback Original
ON THE WRONG BODY
I have never been comfortable in my own body. Rather, I've felt my whole life that I was born in the wrong body. A slight woman, femme in appearance, olive skin that has varied from dark to light, thick black curly hair, large eyes, hands and feet too big, of somewhat more than average height and somewhat less than average weightI've tried my whole life to understand what it is that seems off to me. It's deeper than gender and sexuality, more complicated than just surface appearances. Sometimes the dysmorphia I experience in my body feels purely psychological and other times it feels like something weirder. As a child, I thought of myself as a ghost, an essence at best who'd entered some incorrect form. As I grew older, I accepted it as "otherness," a feature of Americanness even. But every room I walk into I still quickly assign myself to outsider status, though it seems not everyone can see this. Many have in fact called my looks ...
Khakpour's story is a powerful one of being mired in sickness and not getting the necessary help from medical professionals. Doctors insisted her problems were psychological; one even recommended that she check into a psych ward. It's also clear just how time-consuming and expensive being a chronic patient can be. There is, unfortunately, some inherent repetition in a book of this nature. At times it feels like an endless cycle of doctors, appointments, and treatment strategies ranging from a paleo diet and alternative medicines to benzodiazepines, drugs used to treat anxiety. The details of her many jobs and relationships can blend into one. However, the overall arc of struggling with one's body and coming to terms with limitations will resonate widely...continued
Full Review (803 words)
(Reviewed by Rebecca Foster).
Porochista Khakpour's Sick is a memoir of living with chronic Lyme disease. Lyme disease is caused by a bacterial infection, specifically a bite from a tick bearing the Borrelia burgdorferi bacterium. B. burgdorferi is one of just a few spirochetes, or 'spiral-shaped' bacteria, to be identified to date. (The pathogen that causes syphilis is another.) In the USA, the hot spots are the Northeast (from Maine to Virginia), the West coast, and Wisconsin and Minnesota. In these areas, hiking, gardening, and walking a dog through tall grass are considered particularly risky activities. Lyme disease also occurs in Europe and Asia.
Tick bites often result in a noticeable bull's-eye rash, but not always. The rash is not necessarily ...
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