Misdiagnosis and Myth in a Man-Made World
by Elinor Cleghorn
A trailblazing, conversation-starting history of women's health - from the earliest medical ideas about women's illnesses to hormones and autoimmune diseases - brought together in a fascinating sweeping narrative.
Elinor Cleghorn became an unwell woman ten years ago. She was diagnosed with an autoimmune disease after a long period of being told her symptoms were anything from psychosomatic to a possible pregnancy. As Elinor learned to live with her unpredictable disease she turned to history for answers, and found an enraging legacy of suffering, mystification, and misdiagnosis.
In Unwell Women, Elinor Cleghorn traces the almost unbelievable history of how medicine has failed women by treating their bodies as alien and other, often to perilous effect. The result is an authoritative and groundbreaking exploration of the relationship between women and medical practice, from the "wandering womb" of Ancient Greece to the rise of witch trials across Europe, and from the dawn of hysteria as a catchall for difficult-to-diagnose disorders to the first forays into autoimmunity and the shifting understanding of hormones, menstruation, menopause, and conditions like endometriosis.
Packed with character studies and case histories of women who have suffered, challenged, and rewritten medical orthodoxy—and the men who controlled their fate—this is a revolutionary examination of the relationship between women, illness, and medicine. With these case histories, Elinor pays homage to the women who suffered so strides could be made, and shows how being unwell has become normalized in society and culture, where women have long been distrusted as reliable narrators of their own bodies and pain. But the time for real change is long overdue: answers reside in the body, in the testimonies of unwell women—and their lives depend on medicine learning to listen.
"Thoughtful and often disturbing, this exhaustively researched book shows why women—including minority women and Cleghorn herself, who has lupus—must fight to be heard in a system that not only ignores them, but often makes them sicker. Powerful, provocative, necessary reading." - Kirkus Reviews (starred review)
"Feminist historian and academic Cleghorn, herself a victim of medical misdiagnosis, brings first-hand knowledge of the gender bias endemic in the medical profession to this scholarly yet personal, specific yet comprehensive study of dangerously outdated medical practices and attitudes." - Booklist
"Cultural historian Cleghorn's meticulous and wide-ranging debut examines the links between patriarchy, misogyny, and the mistreatment of women's health needs...[It is] a deeply informed and passionately argued call for change." - Publishers Weekly
"An insightful account that is especially recommended for those interested in the history of medicine where it intersects with women's health, as well as readers interested in women's and gender studies." - Library Journal
"An epic yet accessible social, cultural and scientific history of women's health traces the roots of sexism and racism in modern Western medicine from ancient texts through to the present day...A powerful and necessary work of social and cultural history." - Shelf Awareness
"Researcher Cleghorn provides an essential history of misogyny in health care...This clear-eyed assessment is both a catalog of how medicine has been complicit in female oppression and a call to action for drastic reform." - Scientific American
"Unwell Women is a powerful and fascinating book that takes an unsparing look at how women's bodies have been misunderstood and misdiagnosed for centuries. From wandering wombs to demonic explanations of menopause, Elinor Cleghorn packs each page with disturbing historical details that will haunt your psyche for days and weeks to come." - Lindsey Fitzharris, author of The Butchering Art
"If doctors have ever misdiagnosed you, disbelieved your symptoms, or discriminated against you, then Unwell Women is the holy grail of answers you have been waiting for. Elinor Cleghorn has written a decisive, comprehensive, well-researched, and fascinating book about the ways in which medicine has failed women throughout history until now, and what that neglect has cost us—including our lives. I wish I'd had this book in 2018 when I was fighting with my gynecologist to remove my fibroids, but I am glad to have it as I navigate two chronic illnesses. As we continually negotiate power dynamics with doctors, Unwell Women will instantly become an invaluable addition to the arsenal of tools we need to fight for the care we deserve." - Evette Dionne, author of Lifting as We Climb
"If you live in a female body, and if you've ever thought to yourself, 'Why-oh-why are doctors not taking my legitimate health concerns seriously,' this book answers that question definitively. This history of the female patient is the one I was searching for the entire time I was writing my own book, and I cannot recommend it highly enough. One thousand more books like this, please." - Sarah Ramey, author of The Lady's Handbook for Her Mysterious Illness
This information about Unwell Women was first featured
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Any "Author Information" displayed below reflects the author's biography at the time this particular book was published.
Elinor Cleghorn has a background in feminist culture and history, and her critical writing has been published in several academic journals, including Screen. After receiving her PhD in humanities and cultural studies in 2012, Elinor worked for three years as a postdoctoral researcher at the Ruskin School of Art at the University of Oxford on an interdisciplinary arts and medical humanities project. She has given talks and lectures at the British Film Institute, where she has been a regular contributor to the education program, Tate Modern, and ICA London, and she has appeared on the BBC Radio 4 discussion show The Forum. In 2017, she was shortlisted for the Fitzcarraldo Editions Essay Prize, and she has since written creatively about her experience of chronic illness for publications including Ache (UK) and Westerly (AUS). She now works as a freelance writer and researcher and lives in Sussex.
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