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Susan Nussbaum was a playwright, novelist, and a long time disability rights activist. She won the 2012 PEN/Bellwether Prize for Socially Engaged Fiction for her novel Good Kings Bad Kings. Two of her plays have been published: Mishuganismo in the anthology Staring Back: The Disability Experience from the Inside Out and No One As Nasty in Beyond Victims and Villains: Contemporary Plays by Disabled Playwrights. She was most interested in creating authentic disabled characters and all of her plays, as well as her novel, feature disabled characters prominently.
As a disability rights activist, Nussbaum started one of the earliest groups for girls with disabilities, the Empowered Fe Fes. For her work with disabled girls over the years, she was named as one of 50 Visionaries Who are Changing Your World by the Utne Reader in 2008.
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I used to wonder where all the writers who have used disabled characters so liberally in their work were doing their research. When I became a wheelchair-user in the late '70s, all I knew about being disabled I learned from reading books and watching movies, and that scared the shit out of me. Tiny Tim was long-suffering and angelic and was cured at the end. Quasimodo was a monster who loved in vain and was killed at the end, but it was for the best. Lenny was a child who killed anything soft, and George had to shoot him. It was a mercy killing. Ahab was a bitter amputee and didn't care how many died in his mad pursuit to avenge himself on a whale. Laura Wingfield had a limp so no man would ever love her.
This imagery fresh in my mind, my own future seemed to hold little promise. I had been in acting school at the time I was injured. As all of the theaters were now inaccessible to me, both behind the stage and in front, and the chances of any director in the world hiring me were remote, I decided I had no choice but to reinvent myself.
I joined the disability rights movement, barely organized in Chicago back then, and quickly came to realize that I was not alone. My surprisingly militant comrades and I addressed ourselves ...
No pleasure is worth giving up for the sake of two more years in a geriatric home.
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